Oddities, Profundities, Profanities and Dad Stuff

Category: Family (Page 7 of 21)

HopeKids

Hello folks!  Today I wanted to tell you about an organization that we belong to.  It is called HopeKids.  HopeKids is  non profit charitable organization that is all about helping families of kids with terminal diseases and afflictions do “normal” things.  They primarily were founded with cancer kids in mind and have since broadened out to include all sorts of diseases including, heart disease and Kidney disease.

They recognize that all of these diseases affect the whole family.  They are permanent diseases that can be treated somewhat, but in most cases kids can’t do things that other kids can.  Most of the kids in HopeKids here in Utah are immunocompromised, including my daughter.

Please visit http://www.firstgiving.com/ameliaskidney and sign up to be a sponsor for our team!

If you don’t know, immunocompromised means that they are in treatment for especially cancer, or they take drugs to suppress their immune system so that the cancer cells can be killed or, like my daughter, so she does not reject her kidney transplant.  Most kids in this situation have to be very careful where they go because they can get sick very easily.   Even a simple cold can turn into pneumonia because these kids can’t fight the bugs.

HopeKids gives families a place to go where everyone is special because everyone has some disease.  It becomes very close knit and it is great when you go to a place where people understand what you are going through and all of the kids can be treated normally.

I can’t tell you how many people would turn away or walk away from us in the store when my daughter had a feeding tube in her nose.  Or if they caught sight of her dialysis catheter that was in her upper chest wall.  I saw people look in horror as we would give her medications.  And she did not have many things to show.  There are kids with breathing tubes, as well as feeding tubes, or wheelchairs or crutches.   I have seen people avoid all of these type of kids.

HopeKids doesn’t.  No one cares what these kids are hooked up to or what they have in them to keep them alive.  No one cares that some are bald from chemotherapy or that they have to wear a mask to keep any germs out.  I still make my daughter wear a mask about half of the time, and that is over a year out from her transplant.  No one thinks twice about that at a HopeKids event.

What kids of things do they do?  Movies, arcade visits, plays, we have seen the dress rehearsal of the nutcraker from a pro ballet troupe for the past couple of years.  They do a birthday party each quarter for the kids who have birthdays in that quarter, and each kid gets a personalized present from HopeKids.   We got to go to this event: http://www.deseretnews.com/article/700031968/Hope-Kids-offers-a-modern-fairy-tale-for-children-with-illnesses.html.

All of these events are free to the HopeKid and the family!  Which brings me to another point today.  While HopeKids is always looking for donations, we are participating in their yearly fundraiser.  It is a 5K run/walk or an adventure walk if you prefer.  Here are details from the site itself:


Date: Saturday, September 11th, 2010

Time: Registration starts at 8 AM, Races start at 9 AM

Fundraising Goal: $40,000

Come and join us for the 2010 HopeKids Wasatch Adventure taking place at the beautiful This is the Place Heritage Park in Salt Lake City!

All proceeds to benefit HopeKids Utah.
HopeKids is a non-profit 501(c)(3) charitable organization.

Get a fundraising team of up to five together and choose one of four activities to participate in:

  1. The Adventure Walk: Suitable for kids and families, walk the Park grounds visiting each of our Adventure Stations.  You never know who you might meet!
  2. 5K Walk.
  3. 5K Run.
  4. Remote Participant: If you are unable to be at This is the Place on September 11th, feel free to get one or more teams together in your community and walk or run for Hope!

When you walk or run to support HopeKids, you are raising the spirits of hundreds of kids and their families in their greatest time of need.  You are giving them the gift of HOPE!

It’s simple. Use this page to create your team fundraising page. From there, share the team page with family and friends, and spread the word about your WALK OR RUN FOR HOPE. You can walk the 5K or run the 5K.

You can collect “offline” gifts of cash and checks and list those on your fundraising page. Bring those donations with you to the Run/Walk in an envelope clearly marked with Team Name and total enclosed. You can also collect everything “offline” and not use a fundraising page.  (All checks made payable to “HopeKids”)

We hope you will show your support of HopeKids with your time and energy and help raise money when you come and WALK OR RUN FOR HOPE!

IMPORTANT NOTES:

Like last year, there is no registration fee, but we are asking that all teams raise a minimum of $100 for participation in the Wasatch Adventure.  Team sizes are limited to 5 participants.  If you have more participants, consider starting a second team!

Encourage your family and friends to support you! This could be donations to your team, or they could join your team and create their own fundraising page. Or they could create their own team and compete against you!


So Here is the deal, our family is going to participate in the Adventure Walk.  We are going to strap on the hiking boots and get the baby in the stroller.  We are looking for sponsors for our walk!  We are looking to raise $100 or more by the September 11th deadline.  If you can possibly help with $1 or two, I would greatly appreciate it.  All of the money goes directly to HopeKids and helps to fund the yearly activities that we can be a part of.

Please visit http://www.firstgiving.com/ameliaskidney and sign up to be a sponsor for our team!  As a bonus if you do sponsor our team, aside from the gratitude of our family and the satisfaction you get from contributing to a worthy cause, I have some free bonuses for you.

All of these products are very interesting and helpful.  They all come with Master Resale Rights as well.  The products are:

  • Starting your own online business: 96page ebook plus bonuses
  • How to develop the guts to talk with anyone: 46 page ebook plus bonuses
  • 404 Self improvement tips: 119 page ebook plus reseller icons and logos.

Please donate any amount to our cause at http://www.firstgiving.com/ameliaskidney and send me an email to justin@justinsbrainpan.com letting me know that you did.  I will immediately send you all three packages!  I will not even add you to any email list unless you want me to.

Thank you in advance for any and all help that you can give!

-Justin
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Ruminations on Holiday Magic

The First Thanksgiving, painted by Jean Leon G...

Image via Wikipedia

Hello folks.  Today, as most of you know, is the day before Thanksgiving in the US.  I do like this holiday for itself, a day when we can make a giant fancy dinner and overeat before dozing off watching football.  I have always liked the day for giving us an excuse to be together as a family and just give thanks to the Almighty for allowing us to be here for another year.

Granted, our location has changed over this last year but the family is still together and that is what makes the home.  I know I won’t be seeing my sister and her boys or my other sister, much less my Mom and Dad.  I am ok with that.  Why?  I am in charge of my family now.  I am in charge of my kids and making this another special day for them.

That is what happens when you get older.  That is what happens when you are the parents.  You are now in charge of making any holiday magical.  I know I have written before about these things but I feel it is worth repeating.  I am in charge of making Holiday’s magical for my kids, and Thanksgiving starts that holiday season.

Not Black Friday.  Black Friday has become a blight on the image of Thanksgiving.  I know I have enjoyed reading the paper on Thanksgiving night to decide what to get the kids but the commercial push for Black Friday this year has almost eclipsed the Thanksgiving it is supposed to follow.

Black Friday (1940 film)

Image via Wikipedia

I don’t want to get on the Black Friday kick, of you want more of that head over to Cantankerous Old Coots  and read Ralphs post today and mine tomorrow.

As I write this, I am bathed in the glow of some Christmas lights.  We spent Tuesday getting a good portion of our Christmas decorations put up.  Much to my chagrin that we can’t wait until Saturday, but the kids are really excited to get that little jump on Christmas.

They are excited for the whole Santa and family thing.  We are going to be making gifts for each other again this year and the kids are looking forward to deciding what they can make for their siblings.  I am still trying to decide what to do for them individually, but I am writing them a story for all of them to be revealed on Christmas Eve.  Any illustrators out there who could use a couple of bucks???

Back to Thanksgiving.  I usually do the turkey and dressing.  I have done all of it in the past few years when my wife has had to work the night before or on the day.  Nurses have to work holidays, you know.  I get a kick out of making the big dinner and serving it.  I like help with it too.  My wife willbe home this year and doing better than half of it.

I look forward to playing with the kids, hopefully it will be warm enough to go throw a football around the back yard.  I also am looking forward to watching the Macy’s parade with them and I hope that we can keep the focus on Thanksgiving and the family and looking forward to Christmas and not just the shopping.

Happy Thanksgiving everyone, do something nice with your family today no matter where you live.

-Justin

Santa Claus with a little girl

Image via Wikipedia

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My Blog Is Calling And I Must Go!

I wrote a post a couple of weeks ago about the mountains.  How the mountains were calling me and John Muir. During the course of that post I said that my blog is calling and I must go, paraphrasing John Muir of course.  I had said that it would be a great t-shirt.  It still would be.

Today I wanted to write about commitments.  I know there are posts all over Blogistan about how to divide your time and do everything that you want to.  This is only partially about that.  We all have our commitments to our families, wives, husbands, kids etc.  We have work commitments.  We have housework commitments.  There are church and community commitments.  And, if we want a piece of this wonderful internet pie, there are commitments to our websites and blogs.

My blog is my second mistress.  My laptop is my first mistress and I dearly love the internet.  It is hard to budget the time to sit down and write and read blogs and comment on blogs and take care of the kids and cook dinner and do laundry and mop the floor, and entertain the wife, and on and on and on.  So where do you dig out the time to write?

The answer is wherever you can.  Forgo TV for a night, or a couple of hours.  Forgo watching the kids go to sleep.  Go to bed a bit later or get up earlier.  Ben over at 6aliens.com and James at the infopreneur both talk about this.  Carve out the time for your blog and your website.  There is a lot of time devoted to growing your blog and sometimes the web design gets pushed back.  Hard to read, cluttered sites do not bring back traffic.  Work on your site as well.

Tell your friends, “I can’t.  My Blog is calling and I must go.”  Tell your wife (only once in a while), “My Blog is calling and I must go.”  (Flowers smooth that over if you do it too much).  You can tell your kids the same thing, once in a while.

The hard part is figuring out when it is actually beneficial to just shut the laptop and let your blog call.  Devote everything you possibly can to your site so that it will make you money.  Throw everything you can at it so that you can have more time with your family when it is keeping its own head up.  It will still call to you, but not as loud.

When you are at that point, you can take off and go on fabulous vacations because you will be one of the pros like David Risley, or Darren Rowse, or John Chow even.  Your blog will still be calling, you will still go, but you can go from around the world.  John Chow likes to have all of his stuff online so he can access it from anywhere.  WordPress is like that as well.

My blog is calling and I must go, for I want to be a Pro.  I need the cash.

I would love to hear your thoughts in the comments below:

-Justin

Should I sleep or Write more?!?!

The time for bed approaches and I am trying to decide if I should give up and go to bed or keep writing posts! My body says tired, my mind says tired, the energy drink I had a while ago says Write you lazy bastard!  So I write.

Lately I have been working on organizing my day to get everything done that I need to.  I have discovered that I can’t just go all out and hope to get my blog maintained, posts written, house cleaned, family taken care of, and the “other” stuff done.

I found myself glued to the computer, reading blogs, trying to figure out where I am going to be able to open my rss reader, and all of a sudden it was time to get the kids from school and get dinner started.  Oh crap the laundry hasn’t made it downstairs yet.  Oh crappier, the dishes still have to be done…so that was the smell…did we eat lunch?

Yea, it was getting to be a mess.  I am working through some sort of “getting to writing procrastination” garbage that is not helping.  I am still getting my stuff done, just not how I want to.  I started to divide up the day and use the timer method that many others use.

I even got a special timer to help with this, I will have a review of that later this week.  It’s called the Gymboss, it’s beauty.  Anyway, it seems that the timer method is very much going to help get me organized.  I am splitting time into 2 hour blocks and devoting 30 minutes to each task.  At the end of the 30 mins, I have been just stopping and going to the next task.  It has been great to actually get some things done around the house.

Now I have to get time figured out to add in outdoor stuff.  Spring is coming to Utah and my yard needs some help.  If you know how to get rid of freaking grape hyacinth, let me know.

I think I am getting a good balance figured out.  Writing, emails, reading, commenting, maintenance, housework, outdoor work, writing, and blog posts.  A good way to fill a day.  I also realized that I have got to crank out some more fiction for my Saturday Series.  I have used the only 2 complete short stories that make any sense already.  Time to get writing some new stuff!

So now you all must be asking yourselves, how can I help.  Ok most of you are probably not asking yourself anything but when this post is going to end.  Soon I promise.  Here is how you can help.  Keep reading my humble blog, recommend it to your friends, your enemies, and that guy down the street who may have a use for it.

I am going to be running a poll this week about future posts that you may like to see.  I hope to get some great feedback from that.  I have decided to place the mailing list on pause for a bit, I will still make myself put out the newsletter every month but that will be about it.  Please sign up if you are so inclined, I will start putting up exclusive to the newsletter stuff starting in May.

Now for the big one, Please leave comments with how you organize your time so that you can get everything done that you need to do.  What things do you slack off on?  What do you give up on altogether?  I hope to get some great comments and be able to do a followup with lots of backlinks and credits.  Maybe a prize for the 17th commenter…

Of course if you feel so inclined as to write a ton of stuff and want it included, I am open for guest posts!  All you have to do is email me.

If you are reading this, you are fabulous!

-Justin

PS.  If you are reading this, you are incredibly patient.

PPS. If you are reading this, you are finally at the end!  Go comment and get on with your life!

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